Operationalizing CARE Principles and Indigenous Data Sovereignty in Genomic Research
The Research Data Alliance recently published a blog about operationalizing the CARE Principles and Indigenous Data Sovereignty in a genomic research project.
Written by genomicist Dr. Ann Mc Cartney (Assistant Researcher, UC Santa Cruz Genomics Institute), the post highlights a pilot within the European Reference Genome Atlas to support Indigenous data governance. The Local Contexts Traditional Knowledge and Biocultural Labels and Notices were identified as being key to this effort.
Learn more about this pilot and read the full blog post here.